My poor boy looks like an Egyptian mummy!
My husband Michael, 30, and I were given the badge because of Caleb's health problems. He suffers from eosinophilic oesophagitis, an allergic inflammatory condition, and laryngomalacia, which make breathing difficult and causes sleep apnoea. He has severe allergies and eczema, which means he has to be smothered in cream and covered in uncomfortable wet bandages regularly. My poor boy looks like an Egyptian mummy! Air-conditioning can also cause flare ups, as changes in temperature can irritate his skin. To avoid this, I often have to dash in and out of places with him.
One Christmas, I took Caleb and his sister Alexis, four, out shopping. As we left the car park, I noticed a piece of paper fluttering under the windscreen wiper. I did not see a disabled person get out of your car, it read in capital letters. Since then I've found about 30 angry notes and faced dozens of dirty looks and comments - despite always clearly displaying our badge.
I feel on edge whenever I take Caleb out in case someone causes a scene. I'm sick of constantly being judged, I thought, tears welling in my eyes. I made an emotional video and posted it on Facebook. I also set up a page, 'Not all disabilities look like this', adding the wheelchair icon. The reaction was overwhelming. So many people have contacted me to share similar stories.