‘The boys would itch and pick at the bandages as soon as my back was turned,’ Melanie told that’s life!
She recalls dozing off on the lounge once, leaving Harry unattended and waking to the his painful screams.
‘He’d rubbed through his two layers of bandages and taken off all the layers of skin on his legs.’
‘Bath time looked like a warzone.’
It was during one of these baths that Melanie’s friend, Marion, came by to help and was horrified at the suffering the boys were going through.
With Marion’s help, Melanie started fundraising to get the boys to a clinic in Avène, France, that offered a treatment that could help.
‘The response from the community was fantastic,’ Melanie says.
Since visiting the clinic she’s been astonished at the difference it’s made for her boys, and she’s determined to help other mums in her position.
‘I know too well how draining life with these conditions can be, That’s why I’m determined to make a difference.’
For the rest of Melanie’s story, and other great Aussie stories check out issue 9 of that’s life!