Because of the condition, Jareth’s sacroiliac joints dislocate regularly, causing pressure on the sciatic nerve, which can cause the hip to dislocate on average two times a week.
The condition also requires Jareth to use a cane to walk. Jareth said: “My disability makes me feel like I shouldn’t have been born in a human body. How my body reacts, it feels alien.”
A pattern of star tattoos across Jareth’s body reflect this desired alien identity. Jareth said: “I have 78 stars all over my body, I am going to stop at 333 stars.
“It is representative of the inhuman or non-human identified part of me.”
Whilst undergoing female to male gender transition, Jareth had both breasts and nipples removed and now has a completely flat chest.
Jareth said: “My family was not happy about it, most people I knew weren’t happy about it.”
Jareth’s mother, however, did provide support: “She was basically my caretaker for the recovery time for my top surgery, so I owe a lot to her. “I definitely do not regret it; the pain is worth it.”
Jareth has been working as a professional model since the age of 15, and makeup artist since the age of 20, maintaining a passion for it throughout transitioning.
They said: “I absolutely love modelling more than most things in the world despite the difficulties that come from being disabled, transgender and trying to exist in a binary modelling world."
“I do get called a freak a lot, honestly I do not care because I am a freak and I know who I am and I am proud of who I am."
Jareth has no regrets and wouldn’t change anything about how they look.
They said: “I want people to understand that it’s ok to be who you are, to always be true to yourself and to how you feel and how you want to look.
“Don’t ever let anyone tell you that you’re wrong for being who you are.”
